Choosing a Specialty Pharmacy to Support Patients with X-linked hypophosphatemia
X-linked hypophosphatemia (XLH) is an inherited rare disorder that affects 1 in 20,000 individuals and is characterized by low levels of phosphate in the blood.1 Phosphate levels are low because phosphate is abnormally processed in the kidneys, which causes a loss of phosphate in the urine (phosphate wasting) and leads to soft, weak bones (rickets).2
The goals of treatment for children with XLH are1:
To address growth issues
To correct existing rickets and improve the mineralization of bones and teeth
To correct leg abnormalities, often through surgeries
To improve physical function through physical therapy
The goals of treatment for adults with XLH are1:
To reduce the pain, fatigue, and stiffness of the bones, muscles, and joints through physical therapy and pain management
To correct leg abnormalities and fractures through surgery
To improve bone and dental health
A confirmed diagnosis of XLH can be a scary feeling for your patients. That is why finding the right healthcare team that you can be comfortable with is important. When choosing a specialty pharmacy to support patients with X-linked hypophosphatemia, it's essential to consider a team experienced in rare diseases, ready to listen, provide counseling on treatment, help with side-effect management, and assist with sourcing third-party financial assistance.
As part of your X-linked hypophosphatemia patient's treatment, Orsini Specialty Pharmacy provides the following:
Access to X-linked hypophosphatemia Medications: Choose a specialty pharmacy with access to X-linked hypophosphatemia medications. Orsini Specialty Pharmacy has access to Crysvita®(burosumab-twza) injection, for subcutaneous use.
X-linked hypophosphatemia Care Team: Patients need an experienced care team who can provide information and support throughout their journey. The X-linked hypophosphatemia care team includes a single point of contact, clinical education, side-effect management, scheduled refill calls, and a direct phone, fax, and email address.
Shipping & Coordination of Care: Patients receive free priority overnight delivery of medications and necessary medical supplies. Orsini manages care coordination between prescribers, care sites, and patients.
Financial Assistance: Medications can be costly, and many patients cannot afford the co-pays associated with their health insurance. Orsini helps identify and assist in enrolling patients into manufacturer co-pay and foundation support programs.
24/7/365 Access to a Pharmacist: Choose a specialty pharmacy that can provide access to a pharmacist 24/7/365 to ensure patients always receive care when they need it.
If you are a prescriber or physician's office representative,click hereto access the X-linked hypophosphatemia enrollment form. In addition, you can alwaysconnect with an Orsini representativeto schedule a call and answer any questions.If you are a prospective patient,click hereto start your patient enrollment form.
Orsini is a leading independent national specialty pharmacy accredited by ACHC, The Joint Commission, URAC, and NABP. The services we provide allow patients, physicians, payers, and manufacturers to improve care, simplify processes, and achieve better outcomes.