Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition. HAE involves recurring attacks of severe swelling (angioedema) in several parts of the body, including the hands, feet, genitals, stomach, face, or throat. Because of the severe swelling, it can restrict breathing and become fatal. These episodes may be triggered by physical trauma or emotional stress; however, swelling can also occur without a known trigger. When untreated, an HAE attack often lasts for three days, sometimes longer, and people with HAE can experience three or more episodes per month. The frequency and severity of attacks vary significantly among individuals. (Source: www.haea.org)
To bring awareness to Hereditary Angioedema, we are honored to support HAE Day, happening on May 16th. HAE Day was established to unite the community to raise awareness of HAE. The organization that started HAE Day and continues to raise awareness each year is HAE International. They are a global non-profit network of patient associations dedicated to raising awareness of HAE worldwide while improving people’s lives with HAE. In addition, this year marks the 10th anniversary of HAE Day.
If you’re interested in learning more about Hereditary Angioedema (HAE), here are six important facts and statistics that may be helpful.
Orsini Specialty Pharmacy prescribes seven of these therapies. See how we can support HAE patients.
We are honored to play a small part in raising awareness for HAE patients, caregivers, and the providers that support them. See how we can support HAE patients. You can also click here to learn more about our dedicated HAE services.
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